I am proudly performing at a Walk for the Cure for Huntingtons Disease later this month, Sat, September 26th In Irvine Caliornia.
PLEASE, PLEASE,those of you who can... please get involved in conquering this very scary disease. It's not as rare as you would think either. People have to hide the fact that they've even been tested in order to protect themselves from insurance companies. We need a world full of prayers that they find SOME treatments for this horrific and deadly disease that steals whole families. Hopefully soon we can make this a non fatal disease and give people their lives back. PLEASE HELP in anyway you can. There are ways to be tested either confidentially or better yet, anonymously but it can be quite expensive.
Don't allow the families suffering from this horrid disease to be branded with a scarlet letter just by getting tested whether the results are positive or negative. Help to make this disease no longer terminal. Help us to find some treatment.
Currently there are NO treatments which can stop or slow the course of the disease. It is horrible. Don't let it steal the songs of so many beautiful souls. In you are in the Southern Califonia area, please join in the event at UCI this upcoming September 26th and make a difference in what ever way you are able.
You can get involved by signing up for the walk for the cure on September 26th, 2009 and raising money.
You can find out more at http://www.huntingtonsocie..ty.ca
and you can join the Facebook Huntingtons page
Huntingtons Disease is a disease that affects many worldwide.
It is a genetic disease that can be passed down from parent to child. Within each case, there is a 50% chance that the child will or will not have been passed the mutated Huntington Gene.
This disease is a slow neurological regenerative disease causing:
- Cognitive Issues
- Uncontrollable Movements
- Trouble Walking
- Trouble Speaking
- Trouble Eating
Eventually causing death.
There are 2 types of H.D.
1. Juvenile Huntingtons
Affecting ages as young as 5 - 20 years.
2. Adult Huntingtons
Affecting ages 20 and up.
Currently there are no treatments which can stop or slow the course of the disease.
Lets get more people aware of this disease, by spreading the word. Together let's make a difference!
If you sign up as a participant for Walk for The Cure for Huntingtons in Irvine on the 26th or get involved in other ways, I will send you a free mp3 of every song I have recorded. (We are Talking including from WAY back too) Plus if you have a favorite song you've been hearing at my... gigs, that I have yet to record, I will also get it recorded just for you.
And if you make a donation to a Huntingtons Disease related charity, I will write and record a custom song just for you about you and/or a loved one about the sugject of your choice! (Life story songs are wonderful gifts on birthdays and "How These Two crazy people came together " kinds of songs make awesome anniversary and wedding keepsakes- imagine THAT being your first dance at your wedding!!)..
Love you and mahalo ke akua,
UCI Walk For The Cure